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Welcome to EalingHELP Minimize

Recently the Ealing Parent Carer Forum ran a workshop with the Hounslow Parent Carer Forum. Luke Clements, Cerebra professor of Law and Social Justice at Leeds University, was the guest speaker on Carers' Rghts. 

Apparently this was a very interesting and full day with plenty of useful insights into the exact contents, and ommisions, of the Care Act (2014). He provides a useful guide (Care Act 2014 Overview) to this and lots more information on his website - lukeclements.co.uk. The overview is full of references to relevant court cases and legislation which helps put things in perspective. I have just read through this and found several useful pieces of information relevant to my concerns for Luke's future and other issues I have heard about recently.

There is an extrordinary amount of infomation and resources on his site and I can certainly recommend a visit.

 

Nick Radclyffe - Website Manager | 05 February 2019 | Email EalingHELP

“The website for parents/carers of children with disabilities living in Ealing”

New Additions and Updates Minimize
CAMHS CAMHS
CAMHS stands for Child and Adolescent Mental Health Services. They are a specialist NHS service offering assessment and treatment when children and young people have emotional, behavioral or mental health difficulties. Read More
Disability Snow Sport UK (DSUK)
DSUK is a people centred organisation which believes that anyone regardless of their disability can take part in and enjoy snow sport. They have been going since 1976 and have many highly trained instructors and volunteers. Activities are available in the UK and overseas. Read More
Clinical Psychology Service for Children with Disabilities
This service is part of the Child and Adolescent Mental Health Service, and is based within the integrated Ealing Service for Children with Additional Needs (ESCAN) at Carmelita House. Read More
Future of Down's
A website run by parents of children with Down’s syndrome for anyone who needs them! Whether you already have a baby or child with Down’s syndrome, you are pregnant and want advice on screening and tests or have just received a positive diagnosis following an amnio or CVS, then this site is certain... Read More
Carers Allowance
You may be eligible for Carer's Allowance if you are aged 16 or over and you spend at least 35 hours a week caring for someone who is ill or disabled. Carer's Allowance is currently £58.45per week. (May 2012) Read More
Brentford Penguins FC Brentford Penguins FC
Former Brentford FC legend Allan Cockram (played in the 1980's and early 90's) and Dan Wood have created the  Brentford Penguins FC  - a club designed especially for young people with Down's Syndrome in association with the DSA and Brentford FC.  Read More
Ealing 21 Ealing 21
Ealing 21 is a group of parents and their children that meet several times a year to support, encourage, educate, laugh, cry and all those other things that come with having a child with Down Syndrome – mainly we laugh, share information and eat cake! Read More
Graeae Theatre Company
Graeae is a disabled-led theatre company that profiles the skills of actors, writers and directors with physical and sensory impairments. The artistic approach creates aesthetically accessible productions that include a disabled and non-disabled audience. Graeae is the leading British company in ... Read More
Sybil Elgar School
The Sybil Elgar School is a National Autistic Society (NAS) School for children aged 11-19+. The school can take up to 72 pupils as day, weekly or termly boarders. Read More
Zac Browser Zac Browser
ZAC is the first web browser developed specifically for children with autism and autism spectrum disorders such as Asperger syndrome, pervasive developmental disorders (PDD) and PDD-NOS. Read More
Featured News Minimize
Letter from Ofsted to parents and carers in Ealing Letter from Ofsted to parents and carers in Ealing
Ofsted's letter to be circulated to parents and carers by London Borough of Ealing.  Inspection of London Borough of Ealing local area’s effectiveness in identifying and meeting the needs of, and improving outcomes for, children and young people who have special educational needs and/or disabi... Read More
Ofsted come to town Ofsted come to town
Information about the upcoming Local Area Ofsted / CQC (Care Quality Commission) inspection of Ealing's SEND services which will take place next week starting on the 21st January 2019.  Read More
Counting the Costs Counting the Costs
Contact publish Counting the Costs 2018.The results indicate a sharp rise in disabled children going without essentials including specialist therapies and equipment. Read More
Hospital admissions Hospital admissions
London North West University Healthcare hospitals introduces new information for patients with learning disabilities, autism or both and their carers Read More
Good news! Good news!
The Education Secretary, Damian Hinds, has announced new measures to support children with complex needs and disabilities. Read More
New Health Passport New Health Passport
The new Health Passport for adults (over 18s) is now available in digital form and you can download a copy right here. Read More
What about children with disabilities? What about children with disabilities?
The Disabled Children's Partnership  want to ask you to support the campaign calling on the Government to put children at the heart of its spending plans. Read More
Serious Stuff Minimize

Quickly check for any important meetings or events here. For other fun and sporty activities go to our events calendar page for more details.

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Life in Ealing Minimize
Mar20

Day Dreaming Disorder

World Down Syndrome Day. What a day for a daydream! Read More...

Dec22

Last of the year

Nick squeezes one final blog in before the end of the year. Read More...

Dec22

Pipped to the post

Brigitte brings us up to date with what's been happening at the Forum and also announces a few dates... Read More...

Nov28

Let's try this for starters

Brigitte kicks off the Ealing Parent Carer Forum with a look at a typical week. Exhausting reading! Read More...

Oct10

Back at college and other things

Nick writes about Luke's return to college and raises a few other issues he's been thinking about. Read More...

Jul05

Reaching the end of his First Year

Nick looks forward to Summer with Luke back at home. Read More...