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Welcome to EalingHELP Minimize

I know there's not many people that enjoy filling in forms but surveys are here to stay. A sad fact of life, expecially for parents and carers, as are the results in many cases.

The Disabled Children's Partnership have just published results of their survey on the quality of services for disabled children and their families.  The main findings are:

  • 65% of family members surveyed think the quality of social care services has got worse over the past few years
  • 75% of family members surveyed think the quality of health services has got worse over the past few years
  • 45% of family members surveyed said they are aware of specific plans to reduce social care of health services in their area

This is why the Disabled Children’s Partnership is calling on central government to provide ministerial leadership for disabled children and provide dedicated funding for disabled children’s services. 

Closer to home the Ealing Parent Carer Forum have also published the results of their survey of parents using the Bladder and Bowel service. With equally disturbing results.

  • 55% of people surveyed said it was impossible to contact the service in the event of a problem
  • 50% of people surveyed though that the products received were not of suitable quality

The discussions continue but until the information was gathered no one was really sure of where the problems lay.

You can find links to the survey results in our News section.

I guess the bottom line is, that we have to keep taking part in all these surveys if we want things to change. 

 

 

Nick Radclyffe - Website Manager | 29 June 2018 | Email EalingHELP

“The website for parents/carers of children with disabilities living in Ealing”

New Additions and Updates Minimize
Orchyd
Orchyd are a registered charity which create an annual holiday for physically disabled children. They produce an unforgettable ten days in August for twenty children from the UK. Read More
Holidays with Help Holidays with Help
Holidays with Help provide holidays for people with disabilities and their carers and have 30 years experience in specialist respite care breaks.    Read More
Bond Hotel Bond Hotel
Set just off the Blackpool coast, The Bond Hotel is a family-run accessible hotel catering for guests with learning, mental and physical disabilities for over 20 years. Read More
Holiday Homes Trust Holiday Homes Trust
The Holiday Homes Trust has been providing holidays for any family with special needs since it started in 1969.   Read More
Revitalise Revitalise
Revitalise currently run three holiday centres in Chigwell in Essex, Southampton and Southport. Read More
Autism-Friendly Bedroom
Some useful thoughts on helping to make your child's room helps them to get the rest they need. Read More
Ealing Parent Carers Forum Ealing Parent Carers' Forum
Our Ealing Parent Carer Forum was set up to give local parents a voice in planning and delivering services to children with disabilities/additional needs.  Read More
Fair Multimedia
FAIR Multimedia publishes a range of health materials specifically designed for people with learning disabilities.   Read More
Blue Badge Scheme Blue Badge Scheme
The Blue Badge Scheme provides a national arrangement of parking concessions for people with severe walking difficulties who travel either as passengers or are registered blind. Read More
The Performing Arts Childrens Charity The Performing Arts Children's Charity
They run drama and dance workshops in Hampton on Fridays and the children and teachers are very keen to impress with their end-of-term performances that are put on for families and carers. Read More
Featured News Minimize
Disabled Childrens Partnership Disabled Children's Partnership
The Disabled Children's Partnership  have published the results of their survey on the quality of services for disabled children and their families. Read More
Kermit - on being different Kermit - on being different
Nick picked up a copy of The Big Issue recently and found this interview with Kermit, some of which really resonated with him. Read More
EHC Plan - 3 minute survey EHC Plan - 3 minute survey
A reminder to ask you to complete the EPCF's survey on Education, Health and Care Plans is you haven't done so already. Read More
Bladder and Bowel - the saga continues Bladder and Bowel - the saga continues
Here is a transcript of the recent letter Brigitte from the Ealing Parent Carer Forum sent out to parents with a further up date on recent devlopments with the Bladder and Bowel service. Read More
Bladder and Bowel Survey Bladder and Bowel Survey
The Ealing Parent Carer Forum would really like to hear from parents regarding reassessments being carried out and the quality and quantity of the products being delivered by the Bladder and Bowel Serivce. Read More
Speech and Language Survey Speech and Language Survey
If your child attends a mainstream school in Ealing and is receiving Speech & Language Therapy at school PLEASE could you quickly complete this survey? Read More
Serious Stuff Minimize

Quickly check for any important meetings or events here. For other fun and sporty activities go to our events calendar page for more details.

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Life in Ealing Minimize
Mar20

Day Dreaming Disorder

World Down Syndrome Day. What a day for a daydream! Read More...

Dec22

Last of the year

Nick squeezes one final blog in before the end of the year. Read More...

Dec22

Pipped to the post

Brigitte brings us up to date with what's been happening at the Forum and also announces a few dates... Read More...

Nov28

Let's try this for starters

Brigitte kicks off the Ealing Parent Carer Forum with a look at a typical week. Exhausting reading! Read More...

Oct10

Back at college and other things

Nick writes about Luke's return to college and raises a few other issues he's been thinking about. Read More...

Jul05

Reaching the end of his First Year

Nick looks forward to Summer with Luke back at home. Read More...