EalingHELP and Cookies

If you're happy to carry on with your visit and use cookies then please click 'continue'. 

Welcome to EalingHELP Minimize

Recently the Ealing Parent Carer Forum ran a workshop with the Hounslow Parent Carer Forum. Luke Clements, Cerebra professor of Law and Social Justice at Leeds University, was the guest speaker on Carers' Rghts. 

Apparently this was a very interesting and full day with plenty of useful insights into the exact contents, and ommisions, of the Care Act (2014). He provides a useful guide (Care Act 2014 Overview) to this and lots more information on his website - lukeclements.co.uk. The overview is full of references to relevant court cases and legislation which helps put things in perspective. I have just read through this and found several useful pieces of information relevant to my concerns for Luke's future and other issues I have heard about recently.

There is an extrordinary amount of infomation and resources on his site and I can certainly recommend a visit.

 

Nick Radclyffe - Website Manager | 05 February 2019 | Email EalingHELP

“The website for parents/carers of children with disabilities living in Ealing”

New Additions and Updates Minimize
Harrow Kingfishers Harrow Kingfishers
The Harrow Kingfishers are a community swimming club open to people with all physical and mental disabilities. Read More
Otakar Kraus Music Trust Otakar Kraus Music Trust
An extraordinary group of music therapists, the Otakar Kraus Music Trust was started by Margaret Lobo, who is one of those amazing women that just never seems to stop achieving whatever she wants. Luckily her drive is very much focused on helping kids with all sorts of disabilities. Read More
Neville Murray (Percussionist)
Very good for kids who don't mind loud noise! Read More
Young Epilepsy
They provide education, treatment and care for children and young people with severe epilepsy and other neurological disorders. Their site includes information about St. Piers School, St Piers Further Education College and other services such as epilepsy diagnosis, assessment and rehabilitation.... Read More
Trefoil
Trefoil House has a holiday grant fund for children/people to take a holiday where there is no funding available from elsewhere. You can download an application form from the site and you must include an invoice for the holiday. There is a grant limit and you cannot claim after a holiday. Read More
Kids SEN Mediation Kids SEN Mediation
KIDS London SEN Mediation are an independent disagreement resolution service, managed by Kids, a charity with over thirty years' experience of working with children who have special needs and their families. Read More
P.E.S.T.S P.E.S.T.S
PESTS is a Play/Activity/Craft and Support group for under 5's with a disability, and their families. We provide a playgroup on Tuesday and Friday mornings (term time only). As well as allowing the children to play together there are visiting speakers and therapists who work with the group.  Read More
West Ealing Library
This modern well designed library offers: Youth and children's sectionsReading areaStudy areaSelf-issue terminalsComputers with free internet accessEvents Read More
Family Fund Family Fund
The Family Fund are the UK’s largest provider of grants to low-income families raising disabled and seriously ill children and young people. They can help with essential items such as washing machines, fridges and clothing but can also consider grants for sensory toys, computers and much needed fam... Read More
St Ann's School
St Ann's School caters for young people with severe learning difficulties or profound and multiple learning difficulties. Many students also have complex medical conditions, severe communication disorders, bi-modal sensory impairment and challenging behaviours. Read More
Featured News Minimize
Letter from Ofsted to parents and carers in Ealing Letter from Ofsted to parents and carers in Ealing
Ofsted's letter to be circulated to parents and carers by London Borough of Ealing.  Inspection of London Borough of Ealing local area’s effectiveness in identifying and meeting the needs of, and improving outcomes for, children and young people who have special educational needs and/or disabi... Read More
Ofsted come to town Ofsted come to town
Information about the upcoming Local Area Ofsted / CQC (Care Quality Commission) inspection of Ealing's SEND services which will take place next week starting on the 21st January 2019.  Read More
Counting the Costs Counting the Costs
Contact publish Counting the Costs 2018.The results indicate a sharp rise in disabled children going without essentials including specialist therapies and equipment. Read More
Hospital admissions Hospital admissions
London North West University Healthcare hospitals introduces new information for patients with learning disabilities, autism or both and their carers Read More
Good news! Good news!
The Education Secretary, Damian Hinds, has announced new measures to support children with complex needs and disabilities. Read More
New Health Passport New Health Passport
The new Health Passport for adults (over 18s) is now available in digital form and you can download a copy right here. Read More
What about children with disabilities? What about children with disabilities?
The Disabled Children's Partnership  want to ask you to support the campaign calling on the Government to put children at the heart of its spending plans. Read More
Serious Stuff Minimize

Quickly check for any important meetings or events here. For other fun and sporty activities go to our events calendar page for more details.

For some peculiar reason you can only part of these tweets. To see the whole thing click the 'View on Twitter' button above.

Life in Ealing Minimize
Mar20

Day Dreaming Disorder

World Down Syndrome Day. What a day for a daydream! Read More...

Dec22

Last of the year

Nick squeezes one final blog in before the end of the year. Read More...

Dec22

Pipped to the post

Brigitte brings us up to date with what's been happening at the Forum and also announces a few dates... Read More...

Nov28

Let's try this for starters

Brigitte kicks off the Ealing Parent Carer Forum with a look at a typical week. Exhausting reading! Read More...

Oct10

Back at college and other things

Nick writes about Luke's return to college and raises a few other issues he's been thinking about. Read More...

Jul05

Reaching the end of his First Year

Nick looks forward to Summer with Luke back at home. Read More...