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Recently the Ealing Parent Carer Forum ran a workshop with the Hounslow Parent Carer Forum. Luke Clements, Cerebra professor of Law and Social Justice at Leeds University, was the guest speaker on Carers' Rghts. 

Apparently this was a very interesting and full day with plenty of useful insights into the exact contents, and ommisions, of the Care Act (2014). He provides a useful guide (Care Act 2014 Overview) to this and lots more information on his website - lukeclements.co.uk. The overview is full of references to relevant court cases and legislation which helps put things in perspective. I have just read through this and found several useful pieces of information relevant to my concerns for Luke's future and other issues I have heard about recently.

There is an extrordinary amount of infomation and resources on his site and I can certainly recommend a visit.

 

Nick Radclyffe - Website Manager | 05 February 2019 | Email EalingHELP

“The website for parents/carers of children with disabilities living in Ealing”

New Additions and Updates Minimize
Employment support for disabled people
Directgov information on help that is currently available for disabled people wanting to work Read More
Funny Blood
Funny Blood is an organisation founded by Ruby Edwards to raise awareness of her son’s blood condition. Ruby’s son – Noah – was only one when he was diagnosed with a condition called Platelet Function Disorder with Thrombocytopenia. Read More
Healthcare Travel Costs Scheme
If you are on Income Support or Family Credit, you will automatically get all your hospital travel costs paid. Your claim can include public transport fares; petrol costs or taxi fares (if this is the only way you can travel). You should take your travel receipts, appointment letter or card and proo... Read More
Directgov - website of the UK government
Go to Money, Tax and Benefits on the Home Page. Then click on Disabled People on the left hand side of the page. Read More
Easy Tie Easy Tie
Another take on tying up shoelaces. Easy Tie do this by making a lace that doesn't flop around and where each lace is a different colour.  Read More
Holidays with Help Holidays with Help
Holidays with Help provide holidays for people with disabilities and their carers and have 30 years experience in specialist respite care breaks.    Read More
Northolt Leisure Centre Northolt Leisure Centre
The multi-million-pound Northolt Leisure Centre opened for use in January 2010. It boasts a wide array of facilities and takes the place of the old Swimarama, which shut in late 2007. Read More
Festival Spirit Festival Spirit
Festival Spirit is a charity providing the full festival experience to young people who would not normally be able to enjoy one due to life-limiting illness or disability, our VIPs.  Read More
The Autism Directory The Autism Directory
The Autism Directory is a database of resources that is growing every day. Entries are listed by categories and by UK region and area.  Read More
National Disabled Identification Card National Disabled Identification Card
The disabled identification card scheme launched in 2015 and is run by disabled people or parents and relatives of disabled people. Read More
Featured News Minimize
Letter from Ofsted to parents and carers in Ealing Letter from Ofsted to parents and carers in Ealing
Ofsted's letter to be circulated to parents and carers by London Borough of Ealing.  Inspection of London Borough of Ealing local area’s effectiveness in identifying and meeting the needs of, and improving outcomes for, children and young people who have special educational needs and/or disabi... Read More
Ofsted come to town Ofsted come to town
Information about the upcoming Local Area Ofsted / CQC (Care Quality Commission) inspection of Ealing's SEND services which will take place next week starting on the 21st January 2019.  Read More
Counting the Costs Counting the Costs
Contact publish Counting the Costs 2018.The results indicate a sharp rise in disabled children going without essentials including specialist therapies and equipment. Read More
Hospital admissions Hospital admissions
London North West University Healthcare hospitals introduces new information for patients with learning disabilities, autism or both and their carers Read More
Good news! Good news!
The Education Secretary, Damian Hinds, has announced new measures to support children with complex needs and disabilities. Read More
New Health Passport New Health Passport
The new Health Passport for adults (over 18s) is now available in digital form and you can download a copy right here. Read More
What about children with disabilities? What about children with disabilities?
The Disabled Children's Partnership  want to ask you to support the campaign calling on the Government to put children at the heart of its spending plans. Read More
Serious Stuff Minimize

Quickly check for any important meetings or events here. For other fun and sporty activities go to our events calendar page for more details.

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Life in Ealing Minimize
Mar20

Day Dreaming Disorder

World Down Syndrome Day. What a day for a daydream! Read More...

Dec22

Last of the year

Nick squeezes one final blog in before the end of the year. Read More...

Dec22

Pipped to the post

Brigitte brings us up to date with what's been happening at the Forum and also announces a few dates... Read More...

Nov28

Let's try this for starters

Brigitte kicks off the Ealing Parent Carer Forum with a look at a typical week. Exhausting reading! Read More...

Oct10

Back at college and other things

Nick writes about Luke's return to college and raises a few other issues he's been thinking about. Read More...

Jul05

Reaching the end of his First Year

Nick looks forward to Summer with Luke back at home. Read More...