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Welcome to EalingHELP Minimize

Some things you read just stop you in your tracks. So you start reading some more.

For instance, men with a learning disability die 13 years sooner and women with a learning disability die 20 years sooner than people without learning disabilities. These statistics were extracted from the CIPOLD project at the University of Bristol published in March 2013. I couldn't find any more up to date statistics however ss part of my work with the Power Group I know that in Ealing the council are contributing to a Mortality Review (LeDeR) programme which is again being co-ordinated at Bristol. I hadn't quite understood the background as to why the LeDer programme was so important until I found this accessible presentation on YouTube, which is well worth watching.

Health is a constant struggle for many people with learning disabilities and whilst the idea of a Mortality Review sounds ,well, morbid, I think it is important for us all to understand why this is happening and what can be done to change this.

 

Nick Radclyffe - Website Manager | 20 March 2018 | Email EalingHELP

“The website for parents/carers of children with disabilities living in Ealing”

New Additions and Updates Minimize
Fair Multimedia
FAIR Multimedia publishes a range of health materials specifically designed for people with learning disabilities.   Read More
Blue Badge Scheme Blue Badge Scheme
The Blue Badge Scheme provides a national arrangement of parking concessions for people with severe walking difficulties who travel either as passengers or are registered blind. Read More
The Performing Arts Childrens Charity The Performing Arts Children's Charity
They run drama and dance workshops in Hampton on Fridays and the children and teachers are very keen to impress with their end-of-term performances that are put on for families and carers. Read More
Ealing Bladder and Bowel Service Ealing Bladder and Bowel Service
The Bladder and Bowel Health Service caters for children of 4 years and above.  Read More
Ealing Parent Carers Forum Ealing Parent Carers' Forum
Our Ealing Parent Carer Forum was set up to give local parents a voice in planning and delivering services to children with disabilities/additional needs.  Read More
Motionspot Motionspot
Motionspot specialise in the design of accesible bathrooms, wet rooms and washrooms. So if you want more than a clinical environment then they can come up with a more pleasing solution.  Read More
Brentford Penguins FC Brentford Penguins FC
Former Brentford FC legend Allan Cockram (played in the 1980's and early 90's) and Dan Wood have created the  Brentford Penguins FC  - a club designed especially for young people with Down's Syndrome in association with the DSA and Brentford FC.  Read More
Ealing BMX Club Wingz Ealing BMX Club Wingz
Wingz BMX is a new inclusive BMX session for children and young people with additional needs delivered by British Cycling qualified coaches. Read More
The Richmond Knights The Richmond Knights
Venue due to change but will be in Teddington area. Please call or email to find current venue. Children and young people do not have to have a disability - friends can also go along. They provide specialist basketball wheelchairs. Costs around £5 per session. Read More
Locata Ealing Website Locata Ealing Website
Ealing Housing Options gives you the housing information you need so you can make the right choices.  Read More
Featured News Minimize
More Bladder and Bowel news More Bladder and Bowel news
The nurse told the parent she was only hired temporarily and that there was no long term plan for accepting and assessing new claims. Read More
Dont miss out on DLA Don't miss out on DLA
You can still make a claim for DLA providing your child is eligible and under 16. Many families are missing out as they're not sure whether their child is eligible. Read More
Bladder and Bowel Latest Bladder and Bowel Latest
We've just received this update from Brigitte at the Ealing Parent Carer Forum on their progress with the Paediatric Bladder and Bowel Service in Ealing. Read More
Bladder and Bowel Update Bladder and Bowel Update
On the 18th January the Ealing Parent Carer Forum, local parents and providers met up with representatives from the CCG on the subject of the Bladder and Bowel Service in Ealing. Read More
Serious Stuff Minimize

Quickly check for any important meetings or events here. For other fun and sporty activities go to our events calendar page for more details.

For some peculiar reason you can only part of these tweets. To see the whole thing click the 'View on Twitter' button above.

Life in Ealing Minimize
Mar20

Day Dreaming Disorder

World Down Syndrome Day. What a day for a daydream! Read More...

Dec22

Last of the year

Nick squeezes one final blog in before the end of the year. Read More...

Dec22

Pipped to the post

Brigitte brings us up to date with what's been happening at the Forum and also announces a few dates... Read More...

Nov28

Let's try this for starters

Brigitte kicks off the Ealing Parent Carer Forum with a look at a typical week. Exhausting reading! Read More...

Oct10

Back at college and other things

Nick writes about Luke's return to college and raises a few other issues he's been thinking about. Read More...

Jul05

Reaching the end of his First Year

Nick looks forward to Summer with Luke back at home. Read More...