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Recently the Ealing Parent Carer Forum ran a workshop with the Hounslow Parent Carer Forum. Luke Clements, Cerebra professor of Law and Social Justice at Leeds University, was the guest speaker on Carers' Rghts. 

Apparently this was a very interesting and full day with plenty of useful insights into the exact contents, and ommisions, of the Care Act (2014). He provides a useful guide (Care Act 2014 Overview) to this and lots more information on his website - lukeclements.co.uk. The overview is full of references to relevant court cases and legislation which helps put things in perspective. I have just read through this and found several useful pieces of information relevant to my concerns for Luke's future and other issues I have heard about recently.

There is an extrordinary amount of infomation and resources on his site and I can certainly recommend a visit.

 

Nick Radclyffe - Website Manager | 05 February 2019 | Email EalingHELP

“The website for parents/carers of children with disabilities living in Ealing”

New Additions and Updates Minimize
HAPPYEYE HAPPYEYE
HAPPYEYE sell tinted lenses and glasses to help children combat visual stress. Often indicated for children with Dyslexia, ASD and ADHD. Read More
The Coram Children's Legal Centre (CLC)
A national charity offering advice concerning law and policy affecting children and young people. Very useful website with loads of information. Read More
Cinema Exhibitor's Association (Free Cinema Tickets)
The Cinema Exhibitor's Association card is a national card that can be used to verify that the holder is entitled to one free ticket for a person accompanying them to the cinema. To qualify you need to be getting Disability Living Allowance or be registered blind. Download an application from the we... Read More
Disability Now Disability Now
Disability Now is both a magazine and website published by disabled people for disabled people.  Read More
Preparing for Adulthood Preparing for Adulthood
Preparing for Adulthood is a two year programme funded by the Department for Education as part of the delivery support for Support and aspiration: A new approach to special educational needs and disability green paper. Read More
Watermans Theatre
Saturday morning cinema for children at 11am. Regular theatre productions for various ages. Watermans is situated by the river on the London Road in Brentford. There is a restaurant which offers a wide range of Nepalese food. There is a small children's playground, a walkway by the river and a small... Read More
Gifford Primary School
Gifford have places for 20 hearing impaired pupils across the primary age range. The hearing impaired pupils are fully included in the school with the help of acoustically treated accommodation in some areas as well as radio aids. Read More
Ruislip Minature Railway
The Ruislip Lido Railway is a 12-inch narrow gauge railway operated entirely by volunteers. The line runs through the woodlands skirting the lake from Woody Bay Station beside the beach, all the way round to Ruislip Lido (Water's Edge) Station which is close to the car park. Here you can watch the l... Read More
Indoor Wall Climbing Ð Ealing Extreme Ability
An opportunity to experience and learn wall climbing. Sessions cater for young people with learning disabilities and additional needs. Qualified coaching instructors, (experienced at working with special needs climbers) will lead sessions and all safety and climbing equipment is provided. (At presen... Read More
A Special Child in the Family A Special Child in the Family
A lovely site put together by the mother of 2 boys with special needs. Lots of sound advice and practical guidance. Read More
Featured News Minimize
Letter from Ofsted to parents and carers in Ealing Letter from Ofsted to parents and carers in Ealing
Ofsted's letter to be circulated to parents and carers by London Borough of Ealing.  Inspection of London Borough of Ealing local area’s effectiveness in identifying and meeting the needs of, and improving outcomes for, children and young people who have special educational needs and/or disabi... Read More
Ofsted come to town Ofsted come to town
Information about the upcoming Local Area Ofsted / CQC (Care Quality Commission) inspection of Ealing's SEND services which will take place next week starting on the 21st January 2019.  Read More
Counting the Costs Counting the Costs
Contact publish Counting the Costs 2018.The results indicate a sharp rise in disabled children going without essentials including specialist therapies and equipment. Read More
Hospital admissions Hospital admissions
London North West University Healthcare hospitals introduces new information for patients with learning disabilities, autism or both and their carers Read More
Good news! Good news!
The Education Secretary, Damian Hinds, has announced new measures to support children with complex needs and disabilities. Read More
New Health Passport New Health Passport
The new Health Passport for adults (over 18s) is now available in digital form and you can download a copy right here. Read More
What about children with disabilities? What about children with disabilities?
The Disabled Children's Partnership  want to ask you to support the campaign calling on the Government to put children at the heart of its spending plans. Read More
Serious Stuff Minimize

Quickly check for any important meetings or events here. For other fun and sporty activities go to our events calendar page for more details.

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Life in Ealing Minimize
Mar20

Day Dreaming Disorder

World Down Syndrome Day. What a day for a daydream! Read More...

Dec22

Last of the year

Nick squeezes one final blog in before the end of the year. Read More...

Dec22

Pipped to the post

Brigitte brings us up to date with what's been happening at the Forum and also announces a few dates... Read More...

Nov28

Let's try this for starters

Brigitte kicks off the Ealing Parent Carer Forum with a look at a typical week. Exhausting reading! Read More...

Oct10

Back at college and other things

Nick writes about Luke's return to college and raises a few other issues he's been thinking about. Read More...

Jul05

Reaching the end of his First Year

Nick looks forward to Summer with Luke back at home. Read More...