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Recently the Ealing Parent Carer Forum ran a workshop with the Hounslow Parent Carer Forum. Luke Clements, Cerebra professor of Law and Social Justice at Leeds University, was the guest speaker on Carers' Rghts. 

Apparently this was a very interesting and full day with plenty of useful insights into the exact contents, and ommisions, of the Care Act (2014). He provides a useful guide (Care Act 2014 Overview) to this and lots more information on his website - lukeclements.co.uk. The overview is full of references to relevant court cases and legislation which helps put things in perspective. I have just read through this and found several useful pieces of information relevant to my concerns for Luke's future and other issues I have heard about recently.

There is an extrordinary amount of infomation and resources on his site and I can certainly recommend a visit.

 

Nick Radclyffe - Website Manager | 05 February 2019 | Email EalingHELP

“The website for parents/carers of children with disabilities living in Ealing”

New Additions and Updates Minimize
Williams Syndrome Foundation Williams Syndrome Foundation
The William Syndrome Foundation offer help, support and guidance for people with Williams Syndrome and their carers. Read More
Ruskin Mill Trust Ruskin Mill Trust
Since 1987, the Ruskin Mill Trust has developed its unique Practical Skills Therapeutic Education brand of expertise working with young people aged 16-25 with complex behaviour and learning difficulties and disabilities, including autistic spectrum conditions, whose needs cannot be met elsewhere. ... Read More
Include Me Too Include Me Too
Include Me TOO (IM2) is a national charity supporting Black, Asian and Minority Communities disabled children, young people and their families from diverse range of backgrounds. Read More
Orchyd
Orchyd are a registered charity which create an annual holiday for physically disabled children. They produce an unforgettable ten days in August for twenty children from the UK. Read More
Buteyko Breathing Association
The Buteyko Breathing Association is a non-profitmaking organisation committed to improving the health of asthmatics and those with other breathing related problems. Read More
AllAboutSpecialNeeds.com
A website crammed with information. Set up by the father of a boy with Down's Syndrome,  AllAboutSpecialNeeds.com  is built using blogging software which means that anyone can come and comment on the posts placed here – you just need to register. Read More
Springhallow School
Springhallow is a school for children aged 4 to 16 years who have complex autistic spectrum disorders. Children at the school have learning difficulties, ranging from moderate to severe. Read More
Easy Tie Easy Tie
Another take on tying up shoelaces. Easy Tie do this by making a lace that doesn't flop around and where each lace is a different colour.  Read More
Directgov - Motoring and transport
The government website has useful information for all aspects of travel as well as many other topics related to disability. Read More
Computer Cab
Computer Cab provide wheelchair accessible black taxis throughout London. They require a Taxi Card or a Credit Card payment for immediate and advance bookings up to 3 months ahead. Can book by phone or online at their website. Read More
Featured News Minimize
Letter from Ofsted to parents and carers in Ealing Letter from Ofsted to parents and carers in Ealing
Ofsted's letter to be circulated to parents and carers by London Borough of Ealing.  Inspection of London Borough of Ealing local area’s effectiveness in identifying and meeting the needs of, and improving outcomes for, children and young people who have special educational needs and/or disabi... Read More
Ofsted come to town Ofsted come to town
Information about the upcoming Local Area Ofsted / CQC (Care Quality Commission) inspection of Ealing's SEND services which will take place next week starting on the 21st January 2019.  Read More
Counting the Costs Counting the Costs
Contact publish Counting the Costs 2018.The results indicate a sharp rise in disabled children going without essentials including specialist therapies and equipment. Read More
Hospital admissions Hospital admissions
London North West University Healthcare hospitals introduces new information for patients with learning disabilities, autism or both and their carers Read More
Good news! Good news!
The Education Secretary, Damian Hinds, has announced new measures to support children with complex needs and disabilities. Read More
New Health Passport New Health Passport
The new Health Passport for adults (over 18s) is now available in digital form and you can download a copy right here. Read More
What about children with disabilities? What about children with disabilities?
The Disabled Children's Partnership  want to ask you to support the campaign calling on the Government to put children at the heart of its spending plans. Read More
Serious Stuff Minimize

Quickly check for any important meetings or events here. For other fun and sporty activities go to our events calendar page for more details.

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Life in Ealing Minimize
Mar20

Day Dreaming Disorder

World Down Syndrome Day. What a day for a daydream! Read More...

Dec22

Last of the year

Nick squeezes one final blog in before the end of the year. Read More...

Dec22

Pipped to the post

Brigitte brings us up to date with what's been happening at the Forum and also announces a few dates... Read More...

Nov28

Let's try this for starters

Brigitte kicks off the Ealing Parent Carer Forum with a look at a typical week. Exhausting reading! Read More...

Oct10

Back at college and other things

Nick writes about Luke's return to college and raises a few other issues he's been thinking about. Read More...

Jul05

Reaching the end of his First Year

Nick looks forward to Summer with Luke back at home. Read More...