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Recently the Ealing Parent Carer Forum ran a workshop with the Hounslow Parent Carer Forum. Luke Clements, Cerebra professor of Law and Social Justice at Leeds University, was the guest speaker on Carers' Rghts. 

Apparently this was a very interesting and full day with plenty of useful insights into the exact contents, and ommisions, of the Care Act (2014). He provides a useful guide (Care Act 2014 Overview) to this and lots more information on his website - lukeclements.co.uk. The overview is full of references to relevant court cases and legislation which helps put things in perspective. I have just read through this and found several useful pieces of information relevant to my concerns for Luke's future and other issues I have heard about recently.

There is an extrordinary amount of infomation and resources on his site and I can certainly recommend a visit.

 

Nick Radclyffe - Website Manager | 05 February 2019 | Email EalingHELP

“The website for parents/carers of children with disabilities living in Ealing”

New Additions and Updates Minimize
Londonplay
A great organisation and web site dedicated to improving play opportunities for children in London. There is a complete listing of all playgrounds in and around London with short descriptions. Generally the playgrounds will all welcome children with disabilities but depending on the level of support... Read More
Families Matter
Family Lives is a national charity providing help and support in all aspects of family life. Seven days a week through their free Parentline. Call 0808 800 2222 Read More
The Challenging Behaviour Foundation The Challenging Behaviour Foundation
The Challenging Behaviour Foundation wants to see children and adults with severe learning disabilities, who are described as having challenging behaviour, having the same life opportunities as everyone else, including home life, education, employment and leisure.  Read More
Choice Support Choice Support
Choice Support encourage people who use their services to become involved in what they do as much as possible. Read More
Watermans Theatre
Saturday morning cinema for children at 11am. Regular theatre productions for various ages. Watermans is situated by the river on the London Road in Brentford. There is a restaurant which offers a wide range of Nepalese food. There is a small children's playground, a walkway by the river and a small... Read More
The Bobath Approach
The Bobath approach to the management of children with cerebral palsy was pioneered and developed by Dr Karel and Mrs Berta Bobath. Begun in the 1940's the Bobath Concept is now well known and accepted in many countries as one of the leading approaches. The main aim of treatment is to encourage... Read More
National Rail - Passenger Assistance
If you would like assistance when making a journey, such as help getting on or off a train, or ramps for a wheelchair, you need to contact the Train Company that manages the station you are starting your journey from. Read More
Northfields Library
Northfields Library provides a modern, welcoming community library with full disabled access. They have a comfortable seating area with newspapers and a selection of books. The library provides popular adult fiction and non-fiction, books in large print, a quick reference section and a small study a... Read More
Zac Browser Zac Browser
ZAC is the first web browser developed specifically for children with autism and autism spectrum disorders such as Asperger syndrome, pervasive developmental disorders (PDD) and PDD-NOS. Read More
St Ann's School
St Ann's School caters for young people with severe learning difficulties or profound and multiple learning difficulties. Many students also have complex medical conditions, severe communication disorders, bi-modal sensory impairment and challenging behaviours. Read More
Featured News Minimize
Letter from Ofsted to parents and carers in Ealing Letter from Ofsted to parents and carers in Ealing
Ofsted's letter to be circulated to parents and carers by London Borough of Ealing.  Inspection of London Borough of Ealing local area’s effectiveness in identifying and meeting the needs of, and improving outcomes for, children and young people who have special educational needs and/or disabi... Read More
Ofsted come to town Ofsted come to town
Information about the upcoming Local Area Ofsted / CQC (Care Quality Commission) inspection of Ealing's SEND services which will take place next week starting on the 21st January 2019.  Read More
Counting the Costs Counting the Costs
Contact publish Counting the Costs 2018.The results indicate a sharp rise in disabled children going without essentials including specialist therapies and equipment. Read More
Hospital admissions Hospital admissions
London North West University Healthcare hospitals introduces new information for patients with learning disabilities, autism or both and their carers Read More
Good news! Good news!
The Education Secretary, Damian Hinds, has announced new measures to support children with complex needs and disabilities. Read More
New Health Passport New Health Passport
The new Health Passport for adults (over 18s) is now available in digital form and you can download a copy right here. Read More
What about children with disabilities? What about children with disabilities?
The Disabled Children's Partnership  want to ask you to support the campaign calling on the Government to put children at the heart of its spending plans. Read More
Serious Stuff Minimize

Quickly check for any important meetings or events here. For other fun and sporty activities go to our events calendar page for more details.

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Life in Ealing Minimize
Mar20

Day Dreaming Disorder

World Down Syndrome Day. What a day for a daydream! Read More...

Dec22

Last of the year

Nick squeezes one final blog in before the end of the year. Read More...

Dec22

Pipped to the post

Brigitte brings us up to date with what's been happening at the Forum and also announces a few dates... Read More...

Nov28

Let's try this for starters

Brigitte kicks off the Ealing Parent Carer Forum with a look at a typical week. Exhausting reading! Read More...

Oct10

Back at college and other things

Nick writes about Luke's return to college and raises a few other issues he's been thinking about. Read More...

Jul05

Reaching the end of his First Year

Nick looks forward to Summer with Luke back at home. Read More...